HeartLife Hub

Developing Patient Partners to Foster
Meaningful Engagement

Resources

Video Series (1)

Module 1: Patient Oriented Research 

• What is Patient Oriented Research (POR)?
• Why including people with lived experience is important.
• How to do this in a respectful, safe and mutually beneficial way.

Video Series (2)

Module 2: Engaging Patient Partners

• No longer considered a nice to have or optional extra.
• An important requirement for most major funding agencies.
• How do with do this?

Video Series (3)

Module 3: Ethical Considerations

• Disclosure

• Recognize retraumatization potential  

Video Series (4)

Module 4: Equity, Diversity and Inclusion

• EDI overview 

• Impacts diverse populations 

• Minimizing Disparities 

Toolkit

A Terms of Reference (ToR) serves as a navigational compass, outlining the boundaries, objectives, and scope of a project or task. It provides stakeholders with a clear roadmap, fostering alignment and minimizing ambiguity. By defining roles, responsibilities, and expectations, a ToR enhances communication and collaboration, ultimately driving efficient and successful outcomes.

Download the terms of reference and Toolkit here.

Workshops

Unlock a world of knowledge with our comprehensive webinar series. Access presentations, recordings, and essential training materials all in one place. Stay informed and empowered – explore our webinars now

Training

We want to empower patients and researchers with our dedicated training modules. Elevate meaningful engagement through expert-guided resources. Explore our training and capacity offerings to foster collaboration and drive impactful outcomes